SEE MG Patient Organizations

Collaboration Meeting

Join the meeting to strengthen our network

and drive real change for the benefit of all MG patients!

Wednesday, 13.05.2026

13.00-16.15 CEST

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Agenda

The SEE MG PO Collaboration Meeting is a dedicated session focused on strengthening the patient advocacy network across the South East Europe region. This workshop aims to identify shared challenges and co-create a practical roadmap to improve health equity and support for the MG community.

13:00

Setting the Scene

  • Welcome and introductions
  • Overview of the SEE MG Collaboration initiative: objectives, expectations, and desired outcomes
  • EUMGA: presentation on priority to reach health equity in Europe
  • Brief context: the landscape of MG patient advocacy in the SEE region

Duration: 30 min

  • "Tour de table": each patient organization shares their current situation, key challenges, and one priority area where they need support the most
  • Presentation of results from a pre-workshop survey conducted ahead of the meeting

Duration: 45 min

13:30

Hearing from the Community

  • Facilitated group exercise: clustering the reported challenges into common themes
  • Prioritization: voting or ranking exercise to identify the top 2-3 shared obstacles across the region

Duration: 30 min

Identifying Common Bottlenecks

14:15
14:45

Duration: 60 min,

including break

From Challenges to Action

  • Inspiration from Czech Republic Alliance for Rare Diseases
  • Key elements of patient advocacy
  • Explore the top-priority theme
  • Relevant case studies or best practices from other regions
  • Small group work: brainstorming concrete, achievable next steps
15:45

Duration: 30 min

Building the Network

  • Agreeing on shared goals and a collaboration roadmap
  • Defining next steps, responsibilities, and timeline
  • Closing remarks

Register for the event!

Organizer

The SEE MG PO Collaboration Meeting is organized by the Healthcare Education Institute Foundation, a non-profit organization registered in Poland, reg no. 0000683283, VAT no. PL6342898875, registration adress Gliwicka 74/4, 40-854 Katowice, Poland.

Organization of this webinar is supported by UCB. This webinar is organised for educational and awareness‑raising purposes only. In line with applicable regulations and UCB policies, no discussion of specific UCB medicines, investigational products, or treatment recommendations will take place during this session. Questions related to individual products or treatments can be addressed outside this forum. We appreciate your understanding and your support in keeping this discussion non‑promotional and focused on the patient experience and broader disease context.